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Cystic Fibrosis Drug Bronchitol Approved, EU

According to Pharmaxis, Bronchitol, a new cystic fibrosis treatment, has been granted EU approval for patients aged 18 years and older as an add-on therapy to the best standard of care in 29 European countries. Dr...

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One Response to “Cystic Fibrosis Drug Bronchitol Approved, EU”

  • Mandy says:

    While reading your posts I find myslef getting teary My first grandchild..a beautiful perfect little girl..Alyssia..was diagnosed withCF soon after birth due to the routine testing at birth. I can still remember the exact spot that I was standing in when my daughter received a phone call from our hospital telling her that Alyssia had tested positive for the screening. My daughter just let go of the telephone and cried I knew then that something was really wrong I picked up the telephone and spoke to the hospital staff she was encouraging and stated this was just the preliminary testing and more testing would be done at the CF clinc in Sudbury, ON. Alyssia’s father was in shock also but stayed strong enough to gather the info. for the upcoming appointments..Then came the testing, sweat test and once again I can clearly remember where I was standing when my daughter called me to tell me the confiramtion of CF for my little grand-daughter We have cried , we have come to terms with the diagnosis and gathered our strenght and as much info. as we could absorbe .It has brought our family closer and we cherish our little one like we’ll never let her go So far we are very lucky she is thriving and gaining weight her appetite is enormous and my daughter feels inadequate and overwhelmed with the feedings sometimes but I give much praise this is her first child and she is only 19 and doing an amazing job of caring for our little girl..Of course there’s more testing and frequent trips to the clinic but we stay positive by beleiving that a cure will be found as she grows up .You have not posted in some time and I hope all is well .Your posts are insirational and please keep them coming

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